The SciDataCon 2025 Programme is now published.

13–16 Oct 2025
Brisbane Convention & Exhibition Centre
Australia/Brisbane timezone

The transformative impact of the CARE Principles and Māori Data Sovereignty: Lessons from Aotearoa New Zealand

14 Oct 2025, 11:30
1h 30m
Brisbane Convention & Exhibition Centre

Brisbane Convention & Exhibition Centre

Merivale St, South Brisbane QLD 410
Session CAREful Indigenous Data Governance

Speakers

Mr Andrew Sporle (iNZight Analytics Ltd)Dr Daniel Wilson (University of Auckland) Ella Pēpi Tarapa-Dewes (University of Auckland)Dr Kiri West (University of Auckland) Lara Greaves (Victoria University of Wellington)Ms Larissa Renfrew (University of Auckland)Prof. Phil Wilcox (University of Otago)Ms Tori Diamond (University of Auckland, iNZight Analytics Ltd)

Description

The development of Indigenous data sovereignty as a global movement and the creation of the CARE principles have resulted in a diversity of solutions to meet local issues and contexts. This movement from principles to practice has involved both locally-specific and global principles that are informing change to both Indigenous and non-Indigenous data practice.

This session focuses on Aotearoa New Zealand, where Māori data sovereignty and data governance has been advanced over the past decade using many strategies, including Te Mana Raraunga’s principles of Māori data sovereignty, and the newer Māori data governance model from Te Kāhui Raraunga. Some strategies have been more impactful than others in producing change. This session presents case studies from a decade of work in Māori data sovereignty and governance to share lessons with other Indigenous groups and allies.

The session comprises a series of short talks from Māori speakers across a range of disciplines and career stages. Examples of these speakers and topics include:

Considering the application of CARE principles and the Māori Data Governance Model, in the governance of Māori research data held by universities - Dr Kiri West, University of Auckland

Ethical considerations and data management in visual research with Māori youth - Larissa Renfrew, University of Auckland

Applying the CARE principles, Māori data sovereignty and governance to data used in the exercise of Māori political and citizenship rights - AProf Lara Greaves, Victoria University of Wellington

Implementing the CARE principles to enable Māori genomic data sovereignty in precision health. - AProf Phillip WIlcox, University of Otago

Applying Māori data sovereignty to promote equitable public health policy: Using insights from age standardisation and population denominators - Tori Diamond, University of Auckland

The session will end with both a Q&A and a panel discussion with tuākana (senior) and teina (junior, emerging) discussants wrapping up the past ten years of developments, key lessons for international contexts, and looking forward to the next decade.

Primary authors

Mr Andrew Sporle (iNZight Analytics Ltd) Dr Daniel Wilson (University of Auckland) Dr Kiri West (University of Auckland) Lara Greaves (Victoria University of Wellington) Ms Larissa Renfrew (University of Auckland) Prof. Phil Wilcox (University of Otago) Prof. Tahu Kukutai (University of Waikato) Ms Tori Diamond (University of Auckland, iNZight Analytics Ltd)

Presentation materials

There are no materials yet.